Are Online Support Groups Worth it: How to Create and Maintain a Medically Sound Support Group

In today's social media focused society, there's an abundance of options available to chronically ill patients. We used to have to hope someone around us had the same disease, or that a generic support group would meet locally, and then hope that the meeting fit our schedules. If we were sick or experiencing a flare,…

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Weight Loss Supplements and Your AI

One of the things many folks with chronic illness hear over and over again is how much healthier they'd be if they'd just lose some weight. While this isn't always accurate or easy, or even helpful, the world we live in thrives on touting the latest diet craze. Multi level marketing reaches across social media…

How Sarah’s Advocacy Helped Me

I was diagnosed with SAI due to hypopituitarism, along with many more issues, nearly 10 years ago and thought I knew a lot about my diseases.  I joined the Adrenal Disease Support Group on Facebook earlier this year thinking I had a handle on my steroid dosing and illnesses and thought that I was doing…

Testimonials are amazing!

In the advocacy world, we often wonder if our efforts are noticed, if we are making a difference, and if what we are doing is truly effective. A friend from Adrenal Diseases Support Group just sent this to me, and it makes me so happy to read that I am helping people. Below is quoted,…

Validation

In a recent post, I wrote about how to communicate effectively with you or your child's doctors. It's something I've really had to think hard about over the past few years, especially as I've encountered a wide variety of doctors. Some were kind and caring, yet not skilled enough to help. Others were knowledgeable, yet…